Magical smile of a boy with a rare and fatal genetic disease inspires new diaper bag
BabyDish, whose BabyBeReady Diaper Bag Survival Kit has joined the fight to find a cure for Canavan Disease, a rare genetic disorder that has no known cure has introduced a new bag called the Jacob’s Cure Smiley Bag. Inspired by the "thousand-watt smile" of a 10 year old Canavan sufferer, Jacob Sontag, the bag’s fabric features bright happy faces on a black background. Forty percent of the profits from every sale of the exclusive new bag,which retails for $50 and is sold in select stores and on the BabyDishwebsite, go directly to Jacob’s Cure, a non-profit foundation startedby Jacob’s mother, Jordana Holovach.
Canavan is a degenerative brain disorder that destroys myelin, thewhite matter that forms a protective coating around the nerves in thebrain and spinal cord to ensure that nerve impulses are properlytransmitted. As a result of the deterioration of the myelin, childrencannot walk or talk, and lose basic functions such as seeing andswallowing. Death usually occurs in the first decade of life.
The BabyBeReady Survival Kit is prepacked with first year essentials like diapers, travelwipes, onesie, sunhat, bib, rattle, pacifier, burp cloth, and bottle.Everything packed in a great bag with durable plastic overlay and clearzippered compartments that you can use later on. Empty, the bag also makes a great cosmetic case, travel tote, travel toy or arts supply bag for your kids.
Used by celebrity parents such as Mariska Hargitay, Jon Stewart, Katie Holmes, Angelina Jolie, Jennifer Garner, and Gwyneth Paltrow, the bag has just been gifted to Hollywood’s newest stars. Access Hollywood’s Nancy O’Dell (soon to be a mom, herself) sent Jacob’s Cure Smiley Bags to Patrick Dempsey for his twin boys and Marcia Cross for her twin girls. The bags didn’t come empty, they didn’t come stuffed, they came double stuffed with 2 of everything for their babies.
To purchase the Jacob’s Cure bag (or see their other great patterns), visit www.babydish.com. You can learn more about Jacob’s Cure or make a donation directly at www.jacobscure.org.
