Jaime King Says Son Leo Thames Is ‘Doing Amazing’ After Revealing He Underwent a ‘Major Heart Surgery’

09/23/2016 at 07:15 PM ET

Sara Jaye Weiss/Startraks

Last month, Jaime King revealed to fans on social media her now 14-month-old son, Leo Thames,ย underwent “a major heart surgery”ย — a time she remembers as “terrifying and traumatic for us as parents, for our family.”

Now King tells PEOPLE her baby boy is “doing amazing,” and the reason she felt compelled to share her family’s story is because she “knew how traumatic the experience was, how much [post-traumatic stress disorder] I had afterwards, and the trauma that I was experiencing before it.”

“It’s because I didn’t know anybody that had gone through it and I didn’t have people to talk to,” says King, who hosted the WEI Beauty Detoxifying Skincare Line luncheon, along with Jamie Chung in Hollywood on Wednesday.

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Dear all- at 20 weeks our son was diagnosed with Transposition of the Great Arteries AKA TGA. He had a major heart surgery, that was terrifying, and traumatic for us as parents, for our family. Only a few of our best friends knew. I felt that I had to protect him in fear of the unknown, fear he would not make it. We felt isolated & confused. @taylorswift does so many selfless acts that go unnoticed because she does them silently, from such a great place of unconditional giving. As the Godmother of Leo Thames for his birthday she gave an incredible donation to the people that saved his life Dr. Allistar Phillips and his brilliant team. It made us realize that silence cannot connect other parents & people going through these issues. TS knew that by giving back in this way would be the greatest gift one could give to us, to Leo Thames and to all of those with congenital heart issues. She came to the ICU to comfort us, to hold and bond with him with such grace & strength. Our gift back is to share our story that anyone that is going through this is not alone, we understand & want to stand up to bring awareness in the greatest way possible. Leo Thames is the strongest, healthiest boy because of this team. He will live a full and whole life & never have to look back. Thank you Taylor & to EVERYONE listed on this letter we love you. With gratitude and humbleness ๐Ÿ’œ Jaime and Kyle

A photo posted by Jaime King (@jaime_king) on

King — who found out her son had TGA (Transposition of the Great Arteries), a “serious but rare heart defect present at birth, in which the two main arteries leaving the heart are reversed,” according to Mayo Clinicย — when she was 20 weeks pregnant, remembers being in the intensive care unit when Leo Thames was about to have his open-heart surgery.

“I was wheel-chaired to him every three hours, so I could breastfeed him and take care of him before he went into this huge surgery,” recalls King, who adds Leo Thames had to be a “certain weight to survive the open-heart surgery.”

She continues, “It was a terrifying experience.ย But thank God for the medicine that we have now.”

So when Leo Thames’ godmother, Taylor Swift, made a tribute gift donation to Cedars-Sinai in honor of him and his first birthday — and asked King if she wanted the donation “private” or “in his name,” the 37-year-old mother of two says, she realized “it would be such a disservice for me to keep it private just because I wanted ‘privacy’ when I knew that the doctors needed to be honored.”

King, who thanked Dr. Alistair Phillips and his entire team at Cedars Sinai, along with her obstetrician, Dr. Randy Harris, and Dr. Silverman, went on to explain that it was just about “honoring what [Leo Thames’] experience was and about honoring these doctors and also, most importantly, on the other hand, honoring all the parents that are going through this.”

King says she doesn’t want people “to feel like they’re going through it alone.”

“I have a voice and I want to use that voice on behalf of my son — and I know that my son would want that. He’s so strong. He’s such a fighter. He’s unbelievable,” she says.

And King says when she finally did share her story, “It was really beautiful.”

“I’ve gotten thousands of letters from people and now I have a real community of people to talk to,” she says.

“I had no reference point and to be able to talk to people [and ask them], ‘Okay, what has your life been like?’ To know that he’s going to lead a happy, healthy, normal life is just unbelievable, and it’s solely because of his will to live and his fighting nature .,,ย and because of these doctors,” shares King, adding that the family “almost lost him.”

Looking forward, King, who is married to filmmaker Kyle Newman, and her family will be celebrating their other baby boy’s third birthday in a few weeks with an Alice In Wonderland-themed party planned by Jared Eng.

“[James Knight] wants an Alice In Wonderland party,” shares the Hart of Dixie actress, who adds, that he’s “obsessed with Disney.”

Two peas in a double stroller. Because it's my day off boyz. ๐Ÿค˜๐Ÿค˜๐Ÿค˜

A photo posted by Jaime King (@jaime_king) on

“So he wants [Princess] Ariel to drop by and he wants to paint the roses red,” says King. “I assume that means I’m getting a lot of fake white roses and doing a painting station — and Jared’s bushes are going to be filled with painted kids’ roses.”

She continues: “We’re also going to definitely do something [with Disneyland] because that’s his favorite place and our favorite place.”

— Mariah Haas

FILED UNDER: Jaime King , News , Parenting

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Katie on

Having been a nurse working with babies who had heart issues and other birth defects, I can really empathize with these parents and their desire for privacy and their urge to share their struggle with other parents who face the same problems. So happy things went well and he is going to be fine; glad they also had such support from their friends.

Tina on

Leo Thames…sounds like Theo James (the name of Ivanka’s child and also the British actor). I’m glad that her son is doing better.

Esme on

I am so happy that your son is doing well. Our family wasn’t so lucky, and we lost our young niece to a heart issue. Heart defects are the most common birth defects worldwide. Thank you for speaking about CHD (congenital heart defects), and I hope Leo Thames continues to do well x

guest on

Good lord lady, gain some weight!

Ellis on

My youngest brother had this. But when he was born,he is now about 23, the doctors had told my mom that had he been born five years earlier, there would have been nothing they could do to save his life. So my brother really was on the cutting edge of technology then. He also is a study even to this day. He has a syndrome that has gone along with this problem. He has ended up with breathing problems similar to CF, he stopped growing at the age of 7, his legs started growing funny, which required surgery to fix, and a lifelong problem with his lungs which now he has “dead” pockets in his lungs which he is on medicines, nebulizer all day, many times a day. He is always getting resistant to antibiotics to treat it. So he is a constant study. The doctors are finding out that some are going through other things afterward. So glad that Jaime King’s son is doing great.

Mindy on

guest, that’s what you got from this article?? That Jaime King isn’t fat enough?? She looks fine, by the way…does it really mean so much to you people that everyone be overweight, and have to lose weight? So ridiculous to think this woman is sharing the story of how her child was born with a life-threatening heart defect, survived seriously scary surgery, yet you focus on her weight?? Wow…