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03/01/2013 at 12:00 PM ET

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Rachel on

The story about the 9 month old baby truly saddens me 😦 I think this is a simple case of parents using their child’s illness to “get” for themselves — even if they aren’t intentionally trying to do it or don’t see it that way. A 9 month old does not need trips to Disney World, FAO Schwarz, a tea in New York and swimming with the dolphins… especially when chances are the 9-month old won’t even be participating in 99% of any of those experiences.

A sick 9-month old who isn’t even expected to survive but a couple more months doesn’t need to spend those months being carted around the country, on planes or long car trips where germs are spread easily. Instead, it would make WAY more sense for this family to spend those few months at home LOVING that little girl and soaking up those final memories — which I could imagine she would enjoy and actually be able to appreciate far more than experiences that are really meant for her parents… not her.

Amanda on

Rachel the thing about death is that it leaves those behind to grieve. If knowing their little girl got to ‘experience’ some of those things in life helps them can you blame them? If you read their blog they have 2 older children, won’t it be neat for them to be able to reflect on things they did with her when she was alive? She may not realize what is going on but her parents and brother will always have those memories with her. Grief is different for everyone, I cannot imagine but I do not think sitting at home would be best for myself and my family either.

Anonymous on

Amanda- I couldn’t agree more! I also want to add that having a terminally ill sibling is just as hard on kids as it is for their parents. This is why, for example, camps for kids with cancer are also open to kids that DON’T have cancer themselves but have a parent or sibling that does.

It allows them to have a bit of an “escape” and shows them that it’s okay to have fun and enjoy themselves even though their parent or sibling is so sick (oftentimes, kids- and adults too, for that matter!- with extremely ill family members think that it’s wrong for them to be happy or have fun when their loved one is suffering so much!).

Most likely, doing some of the things on the “bucket list” will do the same thing for the older brothers of this precious baby girl!