Comments on: Sarah Parish Mourning Death of Daughter Ella-Jayne

By: ClaireE

ClaireE — Mon, 26 Oct 2009 21:29:08 +0000

I too have just lost my beautiful baby Hannah, she was 3 months old. She had a syndrome called Trisomy13, the chromosome disorders are very similar, with many complications. She would stop breathing and turn blue and have many seizures, seeing her in pain was just the worst thing in the world. She’s not in any pain anymore. We were so lucky to have met her and to see the love she created in everyone. We had 3 lovely months to make memories, of which we will now cherish forever. My other daughter misses her little sis and we miss our baby girl. These babies are very special and affect everyone around them in a wonderful way. We’ll all get through these sad times…. X

By: EILEEN PRITCHARD

EILEEN PRITCHARD — Fri, 26 Jun 2009 19:17:15 +0000

I am so truly devasted for you facing this, I hope you are looking forward to life. My beautiful daughter was born with a serious heart defect too, but was not detected until she was 20 months old, by which time she had an enlarged heart and months to live. She luckily syrvived her 1st surgery and we are awaiting her 2nd. She is also a stroke survivor after having a stroke after her 1st surgery. Read her story BY GOOGLING ‘DAISY PRITCHARD PENYCAE WREXHAM’.I will be thinking of you.

By: NATASHA

NATASHA — Mon, 02 Mar 2009 13:54:14 +0000

I AM SO SHOCKED MY SON WAS IN SOUTHAMPTON AT THE SAME TIME AS ELLA JAYNE.SEEING POORLY CHILDREN IS SO HEARTWRENCHING.MY BABY WAS TAKEN TO SOUTHAMPTON PICU AT 1 DAY OLD FOR LIFE SAVING HEART OPERATIONS.MY HEART GOES OUT TO THEM.

By: Rachel

Rachel — Sun, 15 Feb 2009 20:43:52 +0000

I have only just learned of Ella-Jayne’s death, and it has upset me so much, I love Sarah and James and was so happy for them! I know that they will have some lovely happy memories of Ella-jayne and I know she will be with them forever more and waiting for them to join her some day! I pray that they get through this and are able to be happy again, I’m sure little Ella-Jayne would want them to be happy! God Bless little one!!

By: becky

becky — Tue, 10 Feb 2009 13:17:07 +0000

Reading about poor baby Ella – Jayne has made me cry but i feel comforted that she got to spend quality time in her short life with her doting parents and to feel unconditional love. My heart goes out to you all and i hope that your fundraising goes really well to enable other parents in similar situations to spend precious moments with their babies

By: angela doran

angela doran — Wed, 04 Feb 2009 22:04:37 +0000

I am so sorry about your loss and my thoughts are with you both. You will always have your memories in your heart and you will never forget what a delight E J was to have. My little girl hannah was born 7 years ago with congenital heart defects and had open heart surgery at 6 days old with a 30% chance to live thankfully she pulled through and is a pleasure to have in my life.

By: Frances

Frances — Sat, 31 Jan 2009 18:07:24 +0000

So terrible sorry to hear this dreadful news. My thoughts are with Sarah , James & their families

By: Dee

Dee — Fri, 30 Jan 2009 22:10:58 +0000

So terribly sad, so sorry :{ – I pray that you will find comfort and strength in each other. xxxxx

By: lisa

lisa — Mon, 26 Jan 2009 19:26:32 +0000

My partner and i were on the same ward as Sarah,James and Ella-Jayne with our daughter Ellie in May 2008, Ellie had just had her open heart surgery at 7 weeks and E J was in the bed opposite her. I dont know what it is like to lose a child but i do know what it is like to feel so usless and unable to help your precious little bundle and not being able to make it all go away. My partner and I have thought have nothing else since we heard the news and thank god that we still have our beautiful baby girl, our love to you all xxxxx

By: Tracy Sobey

Tracy Sobey — Fri, 23 Jan 2009 21:27:01 +0000

My thoughts are with you at this awful time, no words can express
From one heart baby mummy to another,,, Lots of Love and Strength
Tracy xx